Fibrodysplasia Ossificans Progressiva is a rare autosomal dominant disease in which bone develops outside of the skeleton, replacing connective and muscle tissue . This is a congenital disease and the initial symptoms foreshadow near total immobility by adulthood. for more info. click here
Her positive view in life is so very inspiring.
Jul 16, 2012
Nov 21, 2011
Sep 27, 2011
The piano and my handicap
One of my passion when I was young was playing the Piano. It was my dream to learn it and become a pianist. I didn't know you had to have good and strong hands and arms to do that. MY piano lessons ended after a year. I discovered I couldn't stretch my arm far enough to do a roll and play the keys at both ends of the piano. It was very frustrating nevertheless I still learned to read notes and play a few pieces.
Unfortunately, our piano has been out of tune for ages now so here I am on our keyboard (set to piano) playing the only piece i still know how to do - Vincent" by Don Mclean. Notice my left hand fingers not bending and stiff? Part of the deformity I got from my paralysis. I haven't played in a long time so excuse the few fumbles.
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